Tuesday, June 30, 2009

6.09.09

Photos from the WOCN Conference


Check out our Photos from the WOCN Conference in St. Louis! Cricket and I had a great time. We enjoyed speaking on behalf of the ostomate and the issues we all face. WOC nurses are so wonderful and we enjoyed meeting so many of them!

Sharing our stories along with what OstomySecrets is all about was fantastic. We received a great response! Everyone especially loved “touching and seeing” the samples. Ooohhh’s and Ahhh’s buzzed around as they were all happy to see what wonderful quality and amazing fabrics OS products are made of. Who would have though ostomy undergarments would be so exciting! What a great time!

Thank you to ConvaTec for allowing us to speak at their booth.
WCON1
WCON2

Tuesday, June 16, 2009

6.16.09

National award program recognizes great comebacks from ostomy surgery



Ostomysecrets was featured in an article posted in "The Phoenix", the official publication of the United Ostomy Associations of America. We have included the article on our website for all to read. If you're interested in reading this story or any others that feature ostomysecrets, we have created an articles section on the website.

Click here to read the article

Wednesday, March 4, 2009

3.2.09

Great Comebacks


Some of you may have not heard, but I was nominated as a south region award recipient for a program called “Great Comebacks” It is about highlighting stories of those whom have “comeback” from serious ostomy/intestinal surgery. ( about the program - http://www.greatcomebacks.com/us/news/2008_national_awards.shtml) . In November, Steve, Anna and I traveled to San Antonio, TX where I was awarded the southern recipient award at a dinner and it was a great week! Then this past week we all traveled to D.C. with the other 3 regional award winners, to a formal awards dinner where a national winner was announced. I was in complete shock when my story was up on a TV screen and Rolf (the spokesman for the program) was telling everyone my background. It was a surreal experience that Steve and I will not easily forget! Needless to say, Anna was bouncing around and as I was about to get up to give a speech, she decided to dance around the room yelling “that’s my mommy!” and “I’m on TV” The whole room laughed and my speech was forgotten (Thankfully!!) I said some words that I don’t even remember and continued to laugh at my little miracle running around! It was a fantastic night!

It’s been exciting to be a part of a program that helps others by inspiring them to continue living a healthy, fulfilled life after such traumatic surgery I feel blessed to be a part of such an amazing group of people. Before the dinner, we went in teams on the Hill where we met with Senators and representatives to help spread awareness of such diseases as Crohn’s, Colitis, colon Cancer. We told our personal stories in an effort to put a face with ostomy surgery, explaining how it can not only save lives, but give you a better quality of life after such illnesses. Given that the ostomy population is only about 700,000 (small compared to those groups of heart disease, cancer etc) health legislators easily forget or are simply unaware of the medical supplies necessary to live with an ostomy. Therefore for a large portion of ostomates supplies are not covered. (costing about $500/month) Personally, I am lucky enough to have my supplies covered but there are so many that are not like me. It was great be a part of this group in trying to make a difference!

The following is a press release from the night below.

http://www.cnbc.com/id/29397323/

FYI – Tony Snow won this award for his battle with Colon Cancer a few years back. Given his death 7 months ago, he was honored at the event and a new public service great comebacks award was created in his name. An army pilot who is currently serving in Iraq, received that award. His story is AMAZING!!!!

So I have soon gone from wanting to hide my surgery to becoming as open as one can be. And you know what – it feels great! This program will also be working with me and OstomySecrets! We hope to make sure everyone knows what is available to them after surgery. Hopefully this is just the beginning of my venture!

Wednesday, October 1, 2008

10.01.08

October – Inventory Arrives – Holy Cow – 4,000 Ostomysecrets



After working diligently for the past 10 months, Christina and I were excited for this day to arrive! I tried to prepare for the arrival of the first shipment but keep questioning, what DOES 4,000 pairs on underwear products look like! As the boxes are carried into my garage one by one, I soon start to panic and realize – Holy Cow! THIS IS WHAT 4,000 units looks like. That night my husband and I start laughing at the box filled, 2 car garage and say to each other – here we go!!!

Within 2 days every unit is counted and checked. Soon shelving it put up in the garage to temporarily house the inventory. I am excited to start filling and sending out all the pre-orders that people have made since June! Some customers have waited up to 4 months for their products and I am eager to get calls made, payments processed and packages mailed. OstomySecrets is finally happening and our dream of helping other Ostomates to feel better about themselves is actually starting. After the first fifty packages go out, I am eager to get feedback. We slowly receive word that indeed we are successful and people are enjoying their products! The response is fantastic!

Monday, September 1, 2008

09.01.08

September – Italy - Ileus



My husband and I were so excited to finally plan a vacation outside the US. We felt that since it had been 2 years post ostomy surgery, all health concerns were behind us and we were free to travel internationally. I had always wanted to go to Italy, where my mom was born and experience my true heritage. So tickets were purchased and off we went, my husband and Anna in tow.

We stayed in two places while we were there; the first was a bed and breakfast in a small town 2 hours north of Rome on an Island called Mt. Argentario. Everything was fantastic and we felt we were truly submerged in the Italian culture. The places we visited were filled with Italians on vacation and you never saw anyone from the US.

Then on the 4th day, something strange happened. I was putting my daughter to bed and started to feel some cramping. So I did the usual and drank LOTS of water and moved around. To no avail, the cramping got worse and I realized I was experiencing a full blown blockage. Several hours passed and after much pain and vomiting we realized I needed to get to an ER for some medical attention. But this is the kicker, we are staying at a bed and breakfast where no one spoke English (and unfortunately we do not speak Italian) and in our room there were no phones! Luckily, we were traveling with close friends who were native Italians. So at 3am in the morning, we woke them up and asked to be driven to the closest ER. We couldn’t even drive ourselves because the of the language barrier on top of now knowing anything about the location of where we were. (Usually when researching the area before traveling, hospital locations were not on the priority list!)

We find ourselves in an Italian ER, my husband watching my 3 yr old in the waiting room while my friend is trying to effectively translate my medical situation and history to the ER doctors. On a bed, I am bent over in excruciating pain and vomiting every few minutes trying to feeding my friend the answers to the doctors’ questions.

After many tests, I ended up having to be admitted to the hospital. I woke the next morning to a room filled with doctors probing me like I was some experiment, asking questions and speaking to be in Italian. FINALLY about an hour or so later, the blockage cleared and I got relief. I was asked to stay for 4 additional days and told them I was ready to go and knew how to handle things going forward. (Handling things meant a clear liquid diet for several days, something that was not easily done in a place known for their amazing food) The next day we were traveling to Rome for 3 days and then would be flying home. I was so thankful to the doctors and staff that took care of me, in a country with a different language and style of healthcare, they were unbelievably passionate and sympathetic while at the same time very professional and were able to treat me effectively! After getting discharged “AMA”(against medical advice) they continued to offer assistance - writing a letter in Italian explaining the ordeal, just in case I would have more complications in Rome and would need to be seen in the ER there as well.

Personally, I have learned that when going to a country where you do not know the language, it may be wise to stay in either a hotel where they do speak English OR stay in American hotel chains! You can never prepare for everything, so if something SHOULD go wrong, it’s wise to be able to communicate easily with someone as well as maybe also knowing where the closest ER is located!

Friday, August 22, 2008

8.22.08

YODAA Conference



This was my first experience going to a YODAA conference and was incredibly happy that I was able to have the opportunity to attend. I was informed of this conference while at the WOCN tradeshow in Orlando and was able to plan a last minute trip to go and see what YODAA was all about. I was also asked to be a “guest speaker” for the attendees.


It was amazing how supportive and open the group as a whole was about their experiences. I was never one for support groups…but this one was fantastic! I was so impressed with the officers and attendees! I think I got out of the trip more then I gave. I highly recommend all young Ostomates to get involved and meet this wonderful group of people!


It’s organizations like YODAA that truly makes a difference in people’s lives.

Lisa with Eric Eng Co-chairman of YODAA

8.22.08

Who would have thought... more issues with having a lone rectum!



In August of 2006 when I had my ileostomy surgery done, the surgeons had left my rectum in tact for 2 reasons, 1- they didn’t think my body could take both surgeries at once being performed and 2- just in case I would ever want to be connected again. So, a few months after surgery when I was all healed up I forgot it was really even around. UNTIL – right before this tradeshow I started having some of what I initially thought were “abscess” issues near my anus and dealing with going to the ER for draining and packing. Then after the tradeshow when I was visiting family in Tennessee the problems resurfaced again! Finally it was determined from a colorectal surgeon, that indeed the ER doctors were incorrect and my problems were caused from a fistula that was formed, another great side effect of Crohn’s disease! I was lucky and was able to get surgery done asap while there to remove the problem. Just goes to show you that you never know what tomorrow will bring!